Written by Jess Milton

NHS Innovative Medicines Fund provides route to new treatments for bleeding disorders

Last year the Government announced plans for a new fund to allow people with rare diseases in…
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Support your wellbeing and join RATW!

Putting your mental health first is not selfish. It’s important to show as much care…
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Launch of New women’s bleeding symptom checker

We’re proud to have launched an easy-to-use online symptom checker to help women and girls with heavy periods find out if…
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Opportunity To Take Part In Our Survey On The Compensation Framework Study

If you or any members of your family has been affected by contaminated blood, we…
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Alex Dowsett to attempt the Hour Record on 3 November in Mexico

We are beyond excited that British professional cyclist and Haemophilia Society member Alex Dowsett will attempt to…
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Meeting in the East Midlands

If you’d like to meet other people in the East Midlands affected by bleeding disorders,…
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Family places available for Over The Wall ‘Camp in the Cloud’

We’re super excited to offer 10 lucky Haemophilia Society member families the chance to enjoy…
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Why taking part in research really matters

William McKeown, a doctor in Northern Ireland – who also has severe haemophilia A – has recently…
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Infusion kit research – can you help?

We have been approached by a fieldwork research agency, Acumen Fieldwork, who are working with…
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Healthcare at Home becomes Sciensus

From 5 July 2021, Healthcare at Home is changing its name to Sciensus. It will…
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Lack of awareness of women’s bleeding disorders is delaying diagnosis

Women’s bleeding disorders can have a big impact physically, psychologically and financially, yet many people…
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Face-to-face PIP assessments to resume in England

With lockdown restrictions in England easing, face-to-face PIP assessments will slowly be returning – with…
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