Living with von Willebrand disorder, part 2
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Healthcare Posts
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Can you help further research into pain and pain memories?
Anna Wells has worked as a physiotherapist within bleeding disorders services for the past 15…Read more
Living with von Willebrand Disorder Part 1.5
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
The Beginning – Living with von Willebrand Disorder Part 1
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Office closure on Monday, 19 September
On the date of the State Funeral, our office will be closed to mark our…Read more
First Gene Therapy Treatment for Haemophilia to be Licensed
Last week the European Medicines Agency recommended that a license be granted to Roctavian a gene therapy…Read more
Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies
The Haemophilia Society is part of a group of rare disease charities called the Cell…Read more
Advances in inhibitor knowledge and treatment
Inhibitors are a complication of haemophilia treatment, in which the patient’s body begins to produce…Read more
New Treatment Options for Glanzmann’s on the Horizon
Last month clinicians and researchers from across the world gathered virtually at EAHAD, a congress…Read more
Show your support on Rare Disease Day 2022
In the UK there are over 36,000 people with a rare genetic bleeding disorder such…Read more
Reporting from EAHAD, which met virtually for its 2022 Congress on Bleeding Disorder Treatment and Care
In February, the European Association for Haemophilia and Allied Disorders had their annual meeting. We…Read more
A Life Inhabited
Thanks to advances in the treatments made available in the last few years, developing inhibitors…Read more