NHS Innovative Medicines Fund provides route to new treatments for bleeding disorders
Last year the Government announced plans for a new fund to allow people with rare diseases in…Read more
Research Posts
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New guidelines for diagnosis and management of von Willebrand Disease published
Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder and there is a…Read more
Take Part in the Newly Launched National Bleeding Disorders Patient Experience Survey
We are proud to launch the Bleeding Disorders Patient Experience Survey, developed in partnership with…Read more
Take part in exciting new research in partnership with Newcastle University
Are you a caregiver for a young person with haemophilia? Would you like to take…Read more
We need you! #TalkingRed – Another Bleeding Survey
There are more than 15,000 women and girls with a diagnosed bleeding disorder in the…Read more
Setting priorities for bleeding disorders – final report published
From 2015 -2018 The Haemophilia Society came together with a wide range of charities, clinical…Read more
New report explores better outcomes for young people with haemophilia
Haemophilia 180 – Taking control A better future for younger people with haemophilia The Haemophilia…Read more
We need your help to find out what matters most
No one understands bleeding disorders better than those who experience it or care for those…Read more
Research into the lives of Haemophilia Siblings
Calling all brothers and sisters of people with severe haemophilia A! One of our members…Read more
Receive a gift voucher in return for your participation in a short Haemnet research study
Are you 16 years or older? The parent of a child under 16? Living with…Read more