News

HQ Summer issue out now!

HQ is our members magazine, which you will receive in hard copy twice a year…
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APPG holds evidence sessions in Parliament

Over the course of the last six weeks, the All-Party Parliamentary Group (APPG) on Haemophilia…
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BBC2 documentary on vCJD

Following last night’s BBC2 documentary on vCJD – Mad Cow Disease: The Great British Beef…
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Getting information from UKHCDO – an update

The United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) has produced an explanatory document about patient…
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New resource – Dental Care For Adults With A Bleeding Disorder is launched

We are pleased to announce that our new resource, Dental Care For Adults With A…
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Setting priorities for bleeding disorders – final report published

From 2015 -2018 The Haemophilia Society came together with a wide range of charities, clinical…
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Response to concerns about Emicuzumab

Recently reports have been shared on social media about deaths relating to a new treatment…
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Share your views with NHS England

NHS England is considering making available a new treatment, Emicizumab (Hemlibra), as an alternative to…
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APPG Inquiry into Access to Treatment – Call for Evidence

The All-Party Parliamentary Group on Haemophilia and Contaminated Blood has launched an Inquiry into the…
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Spring issue of E-HQ is out now!

In this issue, you can read all about the success of our Big Red London…
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Advocating for Access to New Treatment

This is an exciting time as new treatments and new treatment approaches for bleeding disorders…
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Supporter story – Jane Fisher is taking her family on a 10 mile walk for The Haemophila Society

We are gearing up for our Big Red London Bridge Walk this Spring! The route…
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