Julia Collins

Supporter Engagement Officer

“Members are the heart of the Haemophilia Society, and I’m here to support you as much as possible, including through our member events and local groups.

“Our events are a great source of expert information, but they are also a priceless opportunity to discuss and share your experiences with other people in a similar situation, which is really valuable when you are affected by a rare condition.

“We hold conferences, support events, Family Days, weekends for children newly diagnosed and week-long Youth Camps for children aged 9-15. We’re proud that we have great feedback from members about all these events, which tells us that all the planning is so worthwhile!

“We are also working hard to reinvigorate our local group networks across the UK, which can be a great source of support and friendship in your local area.”

Julia, 28, was born in Kerry in Southern Ireland, and then worked in Dublin for the Irish Haemophilia Society for three years before making the move to Kingston, London, in March 2021. It was a big upheaval during a pandemic, but Julia is enjoying London life so far.

If you have any questions about membership, events or local groups, please contact Julia at julia@haemophila.org.uk. Julia can also send out fact sheets and a whole range of helpful and specialist information booklets for free to members, so please get in touch.