A day in the life of a vWD woman: Ria’s story
A day in the life of a vWD woman: Ria’s story The theme of this…Read more
News
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Haemnet London 2020 project: Share your experiences of haemophilia care to raise money for The Society
Haemnet support health & social care professionals so that excellent care becomes the everyday experience…Read more
APPG on Haemophilia and Contaminated Blood – Latest Meeting
The APPG on Haemophilia and Contaminated Blood met on the 29th March. The Agenda for…Read more
Cancelled: APPG meeting March 22 2017
Following reports of an incident in the Westminster area, we’re sorry to say that this…Read more
Bears4Rare: experts call on government to provide fair and fast access to treatments for rare disease patients
Rare conditions affect approximately 1 in 17 people in the UK.1 Although they are living…Read more
Response to the Contaminated Blood Announcement and Consultation
Overview The Department of Health (DH) today published a written ministerial statement announcing some changes…Read more
UK launches FibCLOT®▼ LFB’s human fibrinogen concentrate
LFB Biopharmaceuticals announced today the UK launch of FibCLOT, its human fibrinogen concentrate. This follows…Read more
Submissions to the Health, Disability and Work Green Paper
The Haemophilia Society produced a submission to the Health, Disability and Work Green Paper consultation…Read more
Work, Heath and Disability Consultation – Member Input
The Government’s Work, Heath and Disability Consultation closes at the end of this week. The…Read more
APPG on Haemophilia and Contaminated Blood 8th February
The APPG on Haemophilia and Contaminated Blood met last week on the 8th February to…Read more
Direct-acting Antiviral (DAA) treatment for Hepatitis C risks Hepatitis B reactivation
New guidance from the Medicines and Healthcare products Regulatory Agency (MHRA) advises that all hepatitis…Read more
Westminster Justice Summit
The Haemophilia Society attended the Westminster Justice Summit today, hosted by Andy Burnham MP. At…Read more