Second chance for recombinant VWD factor
If you have von Willebrand disease, we would like your views on a new synthetic…Read more
Treatment Posts
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Peer Review report on centres published today
Today sees the publication of the Overview Report of the Inherited and Acquired Haemophilia and…Read more
VWD Guidelines public comment period now open
The WFH invites the global VWD community to comment on the VWD guidelines and recommendations….Read more
Hemlibra availability with Corona Virus
Following concerns from our community, Roche have issued the following statement about supply and availability…Read more
NHS England decisions on new treatments for bleeding disorders
The first artificially made treatment for people with severe types of von Willebrand disease (VWD)…Read more
Call for feedback from patients with von Willebrand Disease
NHS England is considering evidence which could lead to the commissioning of a new treatment…Read more
The Haemophilia Society welcomes NHSE announcement on Hemlibra
The Haemophilia Society welcomes NHS England’s announcement today that they will now fund a new…Read more
Share your views with NHS England
NHS England is considering making available a new treatment, Emicizumab (Hemlibra), as an alternative to…Read more
Advocating for Access to New Treatment
This is an exciting time as new treatments and new treatment approaches for bleeding disorders…Read more
VWD Guidelines development – have your say
Have you got von Willebrand Disease (VWD), or do you care for someone with VWD?…Read more
Announcement from NHSE on Inhibitor Treatment
NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with…Read more
New report explores better outcomes for young people with haemophilia
Haemophilia 180 – Taking control A better future for younger people with haemophilia The Haemophilia…Read more