Fitusiran update following EAHAD 2021 Congress
During the Congress of the European Association for Haemophilia and Allied Disorders (EAHAD) in early February 2021, Sanofi…Read more
Healthcare Posts
Read more
EHC publishes update on the nasal desmopressin spray recall
In 2020 manufacturer Ferring issued a voluntary, worldwide recall of its desmopressin-containing nasal sprays including Octim®,…Read more
Take part in survey about your experiences of the COVID-19 vaccine
The haemophilia team at Bristol have designed a short questionnaire (with input from some local…Read more
New guidelines for diagnosis and management of von Willebrand Disease published
Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder and there is a…Read more
Your questions about the COVID-19 vaccine and bleeding disorders
Following the official Government guidance giving the COVID-19 vaccine and to people with bleeding disorders…Read more
Understanding the preferences of people with haemophilia for gene therapy
You are invited to take part in a study which aims to explore the preferences…Read more
Take Part in the Newly Launched National Bleeding Disorders Patient Experience Survey
We are proud to launch the Bleeding Disorders Patient Experience Survey, developed in partnership with…Read more
Joint statement from The Haemophilia Society and Healthcare at Home
Constructive discussions held between Healthcare at Home and The Haemophilia Society Senior representatives from The…Read more
Bleeding Matters live! Virtual consultations – making the most of new reality
At our recent webinar we heard from Gary Benson, centre director and Helen Hanson, haemophilia…Read more
APPG on Haemophilia and Contaminated Blood launch final report
The APPG on Haemophilia and Contaminated Blood are a group of MPs who campaign for…Read more
Home deliveries from Healthcare at Home – latest update
We have been made aware that some of our members have been experiencing issues with…Read more
Announcement on the Clinical Commissioning Policy: Vonicog alfa for the treatment and prevention of bleeding in adults with von Willebrand disease
We are delighted to announce that the NHS England Specialised Commissioning Directorate have approved Veyvondi…Read more