Update on face-to-face health assessments for benefits
Please see the following statement from the Department for Work and Pensions As many of…Read more
Healthcare Posts
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Hemlibra availability with Corona Virus
Following concerns from our community, Roche have issued the following statement about supply and availability…Read more
Coronavirus outbreak in the UK
Many of you are understandably concerned about the spread of coronavirus. There is no evidence…Read more
NHS England decisions on new treatments for bleeding disorders
The first artificially made treatment for people with severe types of von Willebrand disease (VWD)…Read more
Update regarding our current approach to coronavirus
We have been following government advice on the Coronavirus (COVID-19) outbreak very closely and have…Read more
Organ donation rules in England are changing
Organ donation in England will move to an “opt out” system from May 2020. This…Read more
Scotland step closer to becoming first country in world to make sanitary products free for all women
Last month we welcomed a new scheme that allows schools and colleges in England to…Read more
Response from NHSBT regarding Corona Virus and blood safety
We understand that our members may have concerns about blood and blood product safety and…Read more
Want to share your experience of living with, or caring for children with haemophilia A?
We are working with Roche Products Limited and Chugai Pharma UK Ltd to help recruit…Read more
Could you help with a study about your experiences of haemophilia A?
We are working with a market research agency specialising in healthcare and medical/pharmaceutical market research….Read more
Roche/Chugai statement regarding particles in vials of Hemlibra®▼ (emicizumab)
During a routine examination of drug product batches, as part of our quality assurance systems…Read more
Call for feedback from patients with von Willebrand Disease
NHS England is considering evidence which could lead to the commissioning of a new treatment…Read more