BBC2 documentary on vCJD
Following last night’s BBC2 documentary on vCJD – Mad Cow Disease: The Great British Beef…Read more
Healthcare Posts
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Getting information from UKHCDO – an update
The United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) has produced an explanatory document about patient…Read more
Setting priorities for bleeding disorders – final report published
From 2015 -2018 The Haemophilia Society came together with a wide range of charities, clinical…Read more
Response to concerns about Emicuzumab
Recently reports have been shared on social media about deaths relating to a new treatment…Read more
Share your views with NHS England
NHS England is considering making available a new treatment, Emicizumab (Hemlibra), as an alternative to…Read more
BRIDGING HEALTH AND SOCIAL CARE ON #RAREDISEASEDAY
In the UK there are over 30,000 people with a rare genetic bleeding disorder such…Read more
Managing Treatment and Access to Products post Brexit
Many of our members have expressed concerns about how access to the treatments they require…Read more
Initial Diagnosis Report Launched
Early this year The Haemophilia Society began a project to understand the experiences of families…Read more
DWP Reviewing PIP Applications from People with Bleeding Disorders
In October 2017, the Department for Work and Pensions set up a working group with…Read more
New report explores better outcomes for young people with haemophilia
Haemophilia 180 – Taking control A better future for younger people with haemophilia The Haemophilia…Read more
We need your help to find out what matters most
No one understands bleeding disorders better than those who experience it or care for those…Read more
Take part in our inhibitor survey
We’re conducting a survey among people aged 16+ with a bleeding disorder who have an…Read more