BRIDGING HEALTH AND SOCIAL CARE ON #RAREDISEASEDAY
In the UK there are over 30,000 people with a rare genetic bleeding disorder such…Read more
News
Read more
Managing Treatment and Access to Products post Brexit
Many of our members have expressed concerns about how access to the treatments they require…Read more
Supporter story – Father is inspired to run the London Marathon after his son is diagnosed with haemophilia A
Hello I am Sam and this is our story about our youngest son Jaxon and…Read more
Supporter story – Caroline Duff and her son Sean take on the London Marathon
I met my husband on the first day of Freshers week at Leeds University in…Read more
Family weekend at Barretstown camp up for grabs
Do you fancy a family weekend at Barretstown camp in County Kildare, Ireland? Barretstown is…Read more
Recruiting members to join haemophilia centre review teams
For many years haemophilia centres have been audited every 3 years to assess the quality…Read more
Initial Diagnosis Report Launched
Early this year The Haemophilia Society began a project to understand the experiences of families…Read more
Monthly updates launched
So much happens here at The Society, and we want to share all of these…Read more
Book now for our member conference and AGM
All members are invited to join us for our two-day mini congress including AGM and…Read more
Come and Meet the Team – Society Meeting 23 September
The Society is planning to hold a meeting in central London on Sunday 23 September,…Read more
VWD Guidelines development – have your say
Have you got von Willebrand Disease (VWD), or do you care for someone with VWD?…Read more
Announcement from NHSE on Inhibitor Treatment
NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with…Read more