Response from NHSBT regarding Corona Virus and blood safety
We understand that our members may have concerns about blood and blood product safety and…Read more
News
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Want to share your experience of living with, or caring for children with haemophilia A?
We are working with Roche Products Limited and Chugai Pharma UK Ltd to help recruit…Read more
Could you help with a study about your experiences of haemophilia A?
We are working with a market research agency specialising in healthcare and medical/pharmaceutical market research….Read more
Our Youth Ambassador Scott has shared his story of how haemophilia impacted his mental wellbeing
It was very difficult as a child to understand why I was being treated differently…Read more
We need you! #TalkingRed – Another Bleeding Survey
There are more than 15,000 women and girls with a diagnosed bleeding disorder in the…Read more
It’s time to talk about bleeding – Christmas Appeal 2019
Help be the difference to women with bleeding disorders this Christmas. The reality of what…Read more
Roche/Chugai statement regarding particles in vials of Hemlibra®▼ (emicizumab)
During a routine examination of drug product batches, as part of our quality assurance systems…Read more
Supporter, Joshua Taylor-Rose gives insight into his trek to Machu Picchu
Josh recently took on the amazing challenge of a 6-day Inca trail trek and made…Read more
Call for feedback from patients with von Willebrand Disease
NHS England is considering evidence which could lead to the commissioning of a new treatment…Read more
The Haemophilia Society welcomes NHSE announcement on Hemlibra
The Haemophilia Society welcomes NHS England’s announcement today that they will now fund a new…Read more
Daily Mail article helps to raise awareness of women with bleeding disorders
There is a lot of misunderstanding about bleeding disorders and many people don’t know that…Read more
Letter from the APPG to Amber Rudd
Letter signed by members of the Haemophilia and Contaminated Blood APPG to Amber Rudd, Secretary…Read more