New Treatment Options for Glanzmann’s on the Horizon
Last month clinicians and researchers from across the world gathered virtually at EAHAD, a congress…
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Show your support on Rare Disease Day 2022
In the UK there are over 36,000 people with a rare genetic bleeding disorder such…
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Reporting from EAHAD, which met virtually for its 2022 Congress on Bleeding Disorder Treatment and Care
In February, the European Association for Haemophilia and Allied Disorders had their annual meeting. We…
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A Life Inhabited
Thanks to advances in the treatments made available in the last few years, developing inhibitors…
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We’re going to Haemfest! Are you?
James and his family have signed up for Haemfest 2022, our free camping event which…
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New Health and Care Bill will reorganise the NHS
The Health and Care Bill, which is currently being debated in parliament, has the potential…
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NHS Innovative Medicines Fund provides route to new treatments for bleeding disorders
Last year the Government announced plans for a new fund to allow people with rare diseases in…
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Introducing our new identity
Today, at our Annual General Meeting, CEO Kate Burt unveiled a new look for the Haemophilia Society (THS), after…
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Launch of New women’s bleeding symptom checker
We’re proud to have launched an easy-to-use online symptom checker to help women and girls with heavy periods find out if…
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Opportunity To Take Part In Our Survey On The Compensation Framework Study
If you or any members of your family has been affected by contaminated blood, we…
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Alex Dowsett to attempt the Hour Record on 3 November in Mexico
We are beyond excited that British professional cyclist and Haemophilia Society member Alex Dowsett will attempt to…
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Useful new mobile app on rare bleeding disorders & novel therapies
The European Haemophilia Consortium (EHC) has launched a really useful mobile app as an information…
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